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Autumn Cleaning

9 October 2010 by stillmilestogo

First, I want to thank everyone for the outpouring of love and support we’ve received since my last post. Yes, I know it’s okay to “lose it” every once in a while, but it doesn’t mean I don’t get embarrassed of myself when I do.

Since then, we have made a significant dent in our “to do” list. It makes me feel quite accomplished to take a pen and scratch off yet another burden on my shoulders. The project has officially been deemed our “Autumn Cleaning.” I don’t know where I’d be without Keith. He really steps up when I need him. Also, a big “thank you” to Bill (“Beepa”) and Ralph for helping us out on our bookshelf repair. We’re really lucky to have you all in our lives.

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Posted in Friends, Keith, reality | 2 Comments »

She’s gonna blow!

5 October 2010 by stillmilestogo

Today, I lost it. I’m not proud to admit it. In fact, I’m embarrassed. But I strive to be open and honest, so here’s the truth: I completely lost it and blew up at my amazingly wonderful husband.

Some background: Three months ago, Keith and I packed up our amazing 1-bedroom apartment that overlooked Fenway and set off for our newest adventure, which happened to be moving to a quaint New England town in Northern Massachusetts. We have been very lucky here, living incredibly close to some friends who closer to family than friends. Unfortunately, I degenerated severely at the end of June through the end of July. I had an increase in seizures, dystonia, and sleep requirements and a decrease in muscle tone, weight, and mobility. Luckily, I have managed to rebound and am only slightly below my previous baseline. Also fortunately, our “family” – including my biological family (my mom!) – was there to help us through everything from the medical to the move and unpacking. We are incredibly blessed to have such an amazing family – biological and acquired.

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Posted in Keith, reality | 2 Comments »

An unlived life

30 September 2010 by stillmilestogo

I will not die an unlived life.
I will not live in fear of falling
Or of catching fire.
I choose to inhabit my days
To allow my living to open me
Making me less afraid
More accessible
To loosen my heart
So that it becomes a wing, a torch, a promise.
I choose to risk my significance.
To live so that that which comes to me as seed
Goes to the next as blossom
And that which comes to me as blossom
Goes on as fruit.
– Dawna Markova

I think I’ve mentioned that I collect quotes, that I steal words when I can’t express myself using my own. If I haven’t mentioned it, well, I collect quotes.

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Posted in Hope, Raising Awareness, Stealing words, The Future | 3 Comments »

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