I’m 27, married, and living in the suburbs of Boston. I have a dog, a macbook, and an apartment in your quintessential New England small town. I’m close friends with Scout and Atticus Finch, Francie and Neely Nolan, and Bilbo Baggins and Gandalf the Grey. I listen to Eva Cassidy on loop and re-read books until the pages come loose from the binding. I love daisies and thunderstorms and adventures far, far away. I don’t like mob mentality, excessive consumerism, or saying “goodbye.” I’m your classic INFJ and don’t mind being typecast as such. Although I’m currently on leave from my PhD program at HSPH, I fill my time tutoring kids with special needs and exploring current neuroscience and metabolism research through my appointment at MIT.
I also have mitochondrial disease. It is progressive and degenerative. There are no proven treatments and no cure.
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Still Miles to Go 
I am so glad you sent me the link to your blog! I am an INFJ as well and the post you wrote on your 26th brithday could have come from my own heart. I am looking forward to meeting you, I have a feeling we jusy may be kindred spirits. I am bummed that I had forgotten about tickets to see Chicago in Brunswick, ME that my mom had given me for this Saturday. So, I guess my drive down to MA for the Monthly Dose of Hope will have to be next month. It is already on my calendar in permenant marker, so unless they schedule my surgery around that time I will be there with bells on, ready to meet new friends!
Blessings,
Sheridan
Hi,
I found out about your blog from Erin Flatley, whom I met at the mito action walk last week. I have read through it, and I think it is beautiful. I have also concluded, in that dangerously assumptive but often rewarding way, that you and I have plenty in common.
I am 20, I live in Cambridge, MA, more specifically, at MIT where I am a third year undergrad in math and physics.
I too am a book lover, though I seem to loose my zeal when it comes to factual historical texts, I am a great lover of great literature which in my opinion includes anything from Count of Monte Cristo to Kim to Jane Eyre to Ender’s Game (an all time favorite of nerds everywhere).
And also I have mito. I was diagnosed recently, but had onset at age aprox. 12. This past year I started having difficulty walking, and now going a block is really pushing it, and likely to cause a fall. So I use a wheelchair mostly.
I’ve written enough I suppose, but it strikes me as remarkable that there are other young women like you with the same disease living not so far from me, and until recently I had no reason to believe I was not the only one. maybe we can meet one day.
I live in Brookline. Do you mind if I ask who you GI doc is?
Hi Chelsea,
I enjoyed meeting you the other night with your husband, and dog. You express yourself wonderfully in your blog. I’m sorry for all you have to go through. I wish there was a cure for us, or hopefully in your lifetime! Now that I have my port a cath, I’m very attached to it and I don’t want mine stolen! It is interesting that your white count is either normal or mildly elevated considering the extent of infection. My white count doesn’t go up much either, and usually my temp is always on the low end, so even normal can be an infection. I’m surprised they kept you so long in Lowell given your complex medical problems. I’m sent to MGH where most of my Dr’s are, for inpatient. You and Stefani are so close to Nashua, and I have felt like I’m the only one on the planet Mito, CIPO and Gastroparesis, etc. on lifetime TPN. I love that you are still enjoying life and following your dreams even though you have a lot of obstacles! You go girl! Big Hugs, Linda
Hi
I am not sure if you are still active on this blog at all, but I stumbled across it while seeking information about DTP. I am a 23 year old nursing student at Emory University. I started having bloating/gas build up and early satiety in January of this year. I had tests run and I found out at the Mayo Clinic last month that my small and large intestine have very very slow transit time. I am trying to stay positive and yet somehow navitgate through this new course of life that I never anticipated for myself. I would love to talk to you somehow (email or phone) to hear a little bit about you and potential coping suggestions/hope? I am sort of beside myself and I think talking to someone would really bring me some solace.
Thank you so much