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Archive for the ‘reality’ Category

Teaching the Color Spectrum

Posted in Autism, Kiddos, Raising Awareness, reality, Special needs, Tutoring on 15 November 2010| 2 Comments »

Sometimes I forget that my favorite tutee is on the autism spectrum. She is incredibly bright and happy. She’s enthusiastic and engaged. But I get occasional reminders.

Today, my optometry appointment was canceled so I called her mother to see if it would be okay if I came earlier (Wednesdays are half-days for her so I usually come quite early). She asked my tutee. All I could hear on that end of the phone was a resounding NOOOOOOO.

Kids on the spectrum usually live quite rigid lives. Rules are absolute. Schedules are absolute. It’s most certainly not easy.

But that’s not the most difficult part. Those on the spectrum also have difficulty recognizing and mimicking social norms. It means many live isolated lives. It does not, however, mean that they do not have feelings and desires to connect.

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Autumn Cleaning

Posted in Friends, Keith, reality on 9 October 2010| 2 Comments »

First, I want to thank everyone for the outpouring of love and support we’ve received since my last post. Yes, I know it’s okay to “lose it” every once in a while, but it doesn’t mean I don’t get embarrassed of myself when I do.

Since then, we have made a significant dent in our “to do” list. It makes me feel quite accomplished to take a pen and scratch off yet another burden on my shoulders. The project has officially been deemed our “Autumn Cleaning.” I don’t know where I’d be without Keith. He really steps up when I need him. Also, a big “thank you” to Bill (“Beepa”) and Ralph for helping us out on our bookshelf repair. We’re really lucky to have you all in our lives.

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She’s gonna blow!

Posted in Keith, reality on 5 October 2010| 2 Comments »

Today, I lost it. I’m not proud to admit it. In fact, I’m embarrassed. But I strive to be open and honest, so here’s the truth: I completely lost it and blew up at my amazingly wonderful husband.

Some background: Three months ago, Keith and I packed up our amazing 1-bedroom apartment that overlooked Fenway and set off for our newest adventure, which happened to be moving to a quaint New England town in Northern Massachusetts. We have been very lucky here, living incredibly close to some friends who closer to family than friends. Unfortunately, I degenerated severely at the end of June through the end of July. I had an increase in seizures, dystonia, and sleep requirements and a decrease in muscle tone, weight, and mobility. Luckily, I have managed to rebound and am only slightly below my previous baseline. Also fortunately, our “family” – including my biological family (my mom!) – was there to help us through everything from the medical to the move and unpacking. We are incredibly blessed to have such an amazing family – biological and acquired.

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