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Archive for the ‘Raising Awareness’ Category

The last 3 months I’ve been busy. Really busy. I’ve logged over 200 hours expanding my knowledge of Photoshop (something with which I had virtually no experience prior to last May), relearning html/css/java, and taking in whatever I could about music and distribution to help my dear friend Stefani get her message heard. Because she’s amazing. Her music is inspiring. And I think everyone else should be given the chance to connect with her music as I have.

It may not be your “cup of tea,” so to speak, but you can’t deny what an amazing journey she’s led. Like me, she has mitochondrial disease. She not only deals with her own disease with dignity, but she also cares for her two young children who have their fair share of medical difficulties. And yet despite this, she reaches out to others in need, whether through her positions with IDF and UMDF or by sharing her lunch to the homeless man on the pike off-ramp. Now, she’s sharing her hope through this CD which speaks of her 5-year journey. I feel honored to call her “family.”

Her debut CD, Hope Rising: The Journey, is now available for pre-order through her website and will be delivered sometime after her release date of November 19th. While you’re there, you can take a gander at some of the help I’ve been lucky to share (the CD cover and insert, her Release Party announcement, and the website itself). And if you encounter any issues with the site, please let me know. It’s still a learning experience and I love getting feedback!

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Sometimes I forget that my favorite tutee is on the autism spectrum. She is incredibly bright and happy. She’s enthusiastic and engaged. But I get occasional reminders.

Today, my optometry appointment was canceled so I called her mother to see if it would be okay if I came earlier (Wednesdays are half-days for her so I usually come quite early). She asked my tutee. All I could hear on that end of the phone was a resounding NOOOOOOO.

Kids on the spectrum usually live quite rigid lives. Rules are absolute. Schedules are absolute. It’s most certainly not easy.

But that’s not the most difficult part. Those on the spectrum also have difficulty recognizing and mimicking social norms. It means many live isolated lives. It does not, however, mean that they do not have feelings and desires to connect.

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Goodness! I seem to have neglected to update recently. My apologies for the delays. I’ve got some great Autumn goodies to share but I want to get the “ugly” stuff out of the way first. So stay tuned for the fun stuff.

On the 29th, I went in for my Antro-duodenal Motility Study. That’s the ugly and technical words for “test to see how well the muscles in my stomach and the entry to my small intestine work.”

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