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Archive for the ‘Kiddos’ Category

The more people I meet the happier I become. From the meanest creature one departs wiser, richer, and more conscious of one’s blessings.
-Samuel Beckett, Waiting for Godot

I guess when it comes down to it, I’m a pretty lucky girl. I’ve been asked on numerous occasions where my outlook comes from. It comes from you, the people who surround me. The people who love me. The people who help me learn from encounters with the “meanest creatures.” The people who remind me each and every day that I am blessed.

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Even though mito sucks, I have seen enormous strength in people who refuse to give up, people who follow their dreams despite – even in spite – of mito.

Just over two weeks ago saw the album release of my dear friend Stefani. The culmination of five years of her hard work and four months of my own. It was a huge success. We sold around 100 CDs and raised over $200 for UMDF and IDF through donations alone (she also donates a portion of each CD sold to the aforementioned charitable foundations).

The day after, we heard from a mutual friend. Her 10-year-old daughter Emma also has mito. While listening to the album, Emma found out that Stefani had mito, too. Her response? “Oh wow, now that means that I can follow my dreams too.”

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Sometimes I forget that my favorite tutee is on the autism spectrum. She is incredibly bright and happy. She’s enthusiastic and engaged. But I get occasional reminders.

Today, my optometry appointment was canceled so I called her mother to see if it would be okay if I came earlier (Wednesdays are half-days for her so I usually come quite early). She asked my tutee. All I could hear on that end of the phone was a resounding NOOOOOOO.

Kids on the spectrum usually live quite rigid lives. Rules are absolute. Schedules are absolute. It’s most certainly not easy.

But that’s not the most difficult part. Those on the spectrum also have difficulty recognizing and mimicking social norms. It means many live isolated lives. It does not, however, mean that they do not have feelings and desires to connect.

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