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Archive for the ‘Hope’ Category

The Mitovian Might

Posted in Blessings, Friends, Hope, Hope Rising, Kiddos, mito, Stealing words, The Future on 9 December 2010| 5 Comments »

Even though mito sucks, I have seen enormous strength in people who refuse to give up, people who follow their dreams despite – even in spite – of mito.

Just over two weeks ago saw the album release of my dear friend Stefani. The culmination of five years of her hard work and four months of my own. It was a huge success. We sold around 100 CDs and raised over $200 for UMDF and IDF through donations alone (she also donates a portion of each CD sold to the aforementioned charitable foundations).

The day after, we heard from a mutual friend. Her 10-year-old daughter Emma also has mito. While listening to the album, Emma found out that Stefani had mito, too. Her response? “Oh wow, now that means that I can follow my dreams too.”

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An unlived life

Posted in Hope, Raising Awareness, Stealing words, The Future on 30 September 2010| 3 Comments »

I will not die an unlived life.
I will not live in fear of falling
Or of catching fire.
I choose to inhabit my days
To allow my living to open me
Making me less afraid
More accessible
To loosen my heart
So that it becomes a wing, a torch, a promise.
I choose to risk my significance.
To live so that that which comes to me as seed
Goes to the next as blossom
And that which comes to me as blossom
Goes on as fruit.
– Dawna Markova

I think I’ve mentioned that I collect quotes, that I steal words when I can’t express myself using my own. If I haven’t mentioned it, well, I collect quotes.

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You, too…

Posted in Boston, Energy for Life, Friends, Hope, Hope Rising, Keith, Kiddos, mito, Monthly Dose of Hope, Raising Awareness, umdf on 28 September 2010| 1 Comment »

Last weekend, I helped put on a patient education meeting for the mito community. The meeting was incredibly productive and I am so incredibly grateful and blessed to have had some amazing friends to help us put it together. In preparation for the meeting, I put together a montage video with a song on my good friend Stefani Bush’s upcoming album, Hope Rising. Hope Rising will be released in November. If you’d like to order a copy, let me know!

The majority of the pictures were given to me over a the last few months to support the efforts of UMDF; others were taken at UMDF-sponsored events. I’m very grateful to all of those who shared with us. We hope the video inspires people to not live only to become victims of the disease. Rather, we hope you’ll join us in our efforts and on our journey. Because you, too, can be part of the cure. For more, please visit umdf.org.

PS I forgot to add one of my pictures on my last blog. Take a look!

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