In case you hadn’t heard, I’m home! I was discharged on Thursday evening and have since spent 3 glorious nights in my own bed. Unfortunately, discharge does not mean that my issues were resolved. Rather, the severe acute issue has passed (temperature stabilized and my severe distension decreased) and now we’re just dealing with a chronic decompensation of my previous baseline. I had to beg and plead to get released, but my GI motility specialist was on my side so the internist gave in. Unfortunately, my GI motility specialist also came with bad news: I needed to stop taking in food by mouth. I’m getting full nutrition via IV so all that needs to be and should be taken enterally is medication and fluids. Otherwise, I’m looking at hospitalizations at least once every 2-4 weeks for the same issue.
I think I’m still in a bit of denial about how bad things are, but I’d rather be in denial and happy than depressed over reality. And maybe it’s not denial; maybe it’s just optimism.
Luckily, I have so many people around me that make denial a wonderful place to live. My friends Sarah, Liz, and Aly (with her boyfriend!) surprised me with a celebration in the hospital on Wednesday, complete with presents and games! Wednesday just happened to be my birthday. Earlier in the day, Stef and Ralph surprised me by bringing by the munchkins and Beast (True’s boyfriend) to wish me some birthday cheer. I can’t help but smile each time I look at my adorable Hello Kitty mylar balloon in my living room.
Last night, I was surprised again when Keith took me over to Stef’s house to say “hi” and everyone was there for an impromptu surprise party. The best part? I got to meet my baby nephew, Jacob. And I got to hold him for a good bit of time while his mommy went to go pick up his daddy from work. I was a very happy girl!
But seriously, with people like these in my life, how could I not think that better days are just around the corner?
Still Miles to Go 
You are an incredible inspiration, Chelsea! You and Keith along with your mito friends are always in our thoughts and prayers! We love you so much! Aunt Karen & Uncle Chris
Chelsea, thank you for pointing the way…. a lesson in looking at the better side of a problem…. keeping a bright outlook. You are a blessing in the lives of so many, thank you.