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Show some muscle

15 September 2010 by stillmilestogo

Tomorrow, Keith takes me in to Boston ultra-early for my surgery. My dear friend Stefani will be joining us to provide moral support and advocate for us should something happen. I must emphasize that nothing should happen. This is a routine procedure being performed in one of the world’s best hospitals (MGH). However, they are requiring me to undergo general anesthesia. I don’t always handle general anesthesia well. In fact, I don’t handle general well. The most recent time, for instance, I stopped breathing for a short time following anesthesia. And recovery is long and arduous.

But, apparently, there’s no way around it. We requested numerous times to perform the surgery under local anesthesia, but the surgeon insisted that it had to be done under general. We’re not sure if this is because I’m labeled a “high risk” case and they decided to perform the surgery in the Same-Day Surgery OR rather in the outpatient clinic like it usually is.

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Posted in At the Doctor's, Boston, Friends, Hope, Hospital life, Keith, mito | 2 Comments »

Visiting Friends and a Friendly Visitor

9 September 2010 by stillmilestogo

First, I apologize for the delay in updates. It’s been a hectic week!

Last Friday, I had a routine neurology appointment at the Brigham. Not too much transpired, but the meeting confirmed that I am in need of a new neurologist. After the appointment, I rewarded myself with a visit to a couple of my friends over at Children’s. We try to visit my good friend Eithene whenever we’re in the area. As I’ve mentioned before, Eithene has been hospitalized most of her four years. While we were at Children’s, we also visited Eithene’s good friend Matthew. Matthew was in for an ileostomy to help with his chronic intestinal pseudo obstruction. We brought them some goodie bags packed with books and zoobles – an interesting toy that I had never heard of before Matthew professed his desire for some. We had a wonderful time visiting with our friends (and, of course, their parents!) before we were off to pick up Keith’s brother from the airport!

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Posted in At the Doctor's, Boston, Friends, Hospital life, Kiddos, Sleep, Tutoring | 2 Comments »

United in Hope

31 August 2010 by stillmilestogo

In 3 weeks, my good friend, Stefani Bush, and I will be joining mito families from all over New England for the MitoAction 5K and Family Fun Walk. While we are not actively seeking donations this time around (we just asked for donations for the UMDF walk we planned in May), we do want to invite you to join our team in an act of solidarity. If you’re not in the area (or are but busy that day), we encourage you to join as a “virtual walker” to show your support and help us raise awareness of this horrible disease. To join, simply click on our link and go to “Join Team” on the left-hand side of the site (right above our team members). From there, you can register to walk ($20) or register as a “virtual walker” (FREE).

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Posted in Boston, Friends, mito, Raising Awareness | Leave a Comment »

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