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Lucky

The more people I meet the happier I become. From the meanest creature one departs wiser, richer, and more conscious of one’s blessings.
-Samuel Beckett, Waiting for Godot

I guess when it comes down to it, I’m a pretty lucky girl. I’ve been asked on numerous occasions where my outlook comes from. It comes from you, the people who surround me. The people who love me. The people who help me learn from encounters with the “meanest creatures.” The people who remind me each and every day that I am blessed.

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As I sit in my room at MGH for the 7th day now – with no end in sight – I had begun to forget that Christmas was just around the corner. I got about halfway through decorating our tree before I went inpatient and I’m not sure if I’ll even get the chance to finish before the holiday is upon us.

Luckily, Keith and I have decided to continue with our trend in recent years and scale the holidays back this year. We’re certainly not scaling back the holiday cheer – oh, no! But we try to walk a different path when it comes to the consumer aspects.

Each year, we hem and haw, stress and spend. And what’s the result? We give our loved ones things. Gift cards that get lost. Trinkets that gather dust. Games that are played for a few months, then forgotten.

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The Mitovian Might

Even though mito sucks, I have seen enormous strength in people who refuse to give up, people who follow their dreams despite – even in spite – of mito.

Just over two weeks ago saw the album release of my dear friend Stefani. The culmination of five years of her hard work and four months of my own. It was a huge success. We sold around 100 CDs and raised over $200 for UMDF and IDF through donations alone (she also donates a portion of each CD sold to the aforementioned charitable foundations).

The day after, we heard from a mutual friend. Her 10-year-old daughter Emma also has mito. While listening to the album, Emma found out that Stefani had mito, too. Her response? “Oh wow, now that means that I can follow my dreams too.”

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