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I want to start out by thanking our Brandeis math friends (and significant others) for keeping us entertained last night with a few rounds of the game Dominion. I’m incredibly grateful that you were around to keep my mind off the reasons I’m still inpatient and rather focused on some fun!

I especially appreciate the distraction as yesterday was not the most pleasant day. I started the day finding out my potassium levels were critically low. (And how the medical team didn’t know that they were even getting low beats me.) I was started off on a bag of potassium. I finished it 4 hours later and had my blood drawn again. Potassium levels were still critical and magnesium levels were incredibly low as well. Two more bags added to my IV pole. Blood drawn at the end of those. Potassium rose to 2.9 (low “normal” is 3.5). Another bag hung through the night. Blood drawn and TPN hooked up overnight. Four hours later blood was drawn again. Potassium went down! Needless to say, I’m hooked up to yet another bag of Potassium in addition to the TPN. This had better work!

The low Potassium levels have certainly been taking effect on my body. My heart has been doing some crazy things. Not only have I been rapidly swinging from tachycardia (high heart rate) to bradycardia (low heart rate), but I’ve also been skipping beats pretty regularly. My hospitalist thinks this will likely improve with my electrolyte levels so it’s nothing to be too concerned about – yet. We’ll revisit the issue once my electrolyte levels have improved.

On to the good new… Yesterday, they finally placed a PICC line so that I could get some IV nutrition (TPN – which looks like melted marshmallow fluff) while waiting for the GJ tubes to help. An added advantage of the PICC line is that all that blood that they’ve been drawing over the past 30 hours has been able to come straight from the PICC – no more sticks!!! And once the GJ tube is in and properly working, we can pull the PICC line.

Christmas got sick

It looks like Christmas came to my room and spewed red and green vomit everywhere. And I love it!

I’ll admit it: I was starting to lose my spirit a little after I’d been in two weeks, without an end in sight, and the projection of spending Christmas at MGH. I’d been poked and prodded every which way. Despite what my medical team was doing, my blood work was abnormal. And my first glimpse at freedom (the first attempt at the GJ tube procedure) failed. Fortunately, I’ve surrounded myself with people who make it nearly impossible to lose one’s spirit!

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Complicated

Nothing with me is ever easy.

As you may have heard, yesterday’s surgery to insert a GJ tube was unsuccessful. Apparently, my small intestines had wrapped around my stomach making it difficult to place the tube without damaging the intestines as well.

Unfortunately, because they had already began by pumping air into my stomach and placing markers (tacks) through my stomach, I still woke up in recovery with a significant amount of pain. The nurses and doctors were awesome, however, and let Keith and Stef come see me in recovery almost immediately. I don’t know what I’d do without them by my side throughout this whole ordeal. In fact, I’ve been incredibly blessed to have dozens of friends and family members visiting and/or supporting me. You’ve all made it so much better.

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