Feeds:
Posts
Comments

Archive for the ‘Stealing words’ Category

Inside the Mitochondria

Posted in In Motion, mito, Raising Awareness, Stealing words on 14 January 2011| Leave a Comment »

Or “Mitochondrio,” according to Jonah’s “Latin.”

I came across this video a while back. It explains a little more about how the mitochondria work and how a single step in the energy-making process can cause the entire production to fail. I hope it’s able to help the non-biology-oriented mind have a better understanding of what “Mitochondrial Encephalomyopathy due to a Complex I Deficiency” means in terms of how my cells function, or rather, don’t function.

Also, I want to encourage anyone and everyone to ask questions. About the cellular process, about my particular deficiencies, about my symptoms, about my diagnosis and the diagnostic process. No question is too invasive. This blog is not just an outlet for me. And it’s not just a means of communicating to all my friends and family. This blog also exists to educate and help raise awareness about Mitochondrial Disease. If you’re still confused, then I’m not doing my job!

Read Full Post »

Lucky

Posted in At the Doctor's, Blessings, Boston, Family, Friends, Hospital life, Kiddos, mito, Stealing words on 15 December 2010| 4 Comments »

The more people I meet the happier I become. From the meanest creature one departs wiser, richer, and more conscious of one’s blessings.
-Samuel Beckett, Waiting for Godot

I guess when it comes down to it, I’m a pretty lucky girl. I’ve been asked on numerous occasions where my outlook comes from. It comes from you, the people who surround me. The people who love me. The people who help me learn from encounters with the “meanest creatures.” The people who remind me each and every day that I am blessed.

(more…)

Read Full Post »

The Mitovian Might

Posted in Blessings, Friends, Hope, Hope Rising, Kiddos, mito, Stealing words, The Future on 9 December 2010| 5 Comments »

Even though mito sucks, I have seen enormous strength in people who refuse to give up, people who follow their dreams despite – even in spite – of mito.

Just over two weeks ago saw the album release of my dear friend Stefani. The culmination of five years of her hard work and four months of my own. It was a huge success. We sold around 100 CDs and raised over $200 for UMDF and IDF through donations alone (she also donates a portion of each CD sold to the aforementioned charitable foundations).

The day after, we heard from a mutual friend. Her 10-year-old daughter Emma also has mito. While listening to the album, Emma found out that Stefani had mito, too. Her response? “Oh wow, now that means that I can follow my dreams too.”

(more…)

Read Full Post »

« Newer Posts - Older Posts »