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Archive for the ‘reality’ Category

Everybody’s got plans… until they get hit.
Mike Tyson

Before the recent one-two punch from infection after infection, and before the internet snafu and ensuing struggles with Comcast, and before the exciting week with visitors, and before I was finally able to get back to work this week, I had great plans. Well, I guess not great plans – they were nothing compared to those of my childhood, or those of a naive high schooler, or even those prior to the latest major health struggles back in December and January – but they were plans.

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I’m home and adjusting. After two hospital stays adding up to 40 days out of the last 46, I’m experiencing some major culture shock. It’s weird being able to do what I want when I want. And ironically, I’m even struggling to adjust to sleeping through the night without a vitals check every 2 hours. Nevertheless, I’m happy to be home.

It hasn’t been easy between 16-20 hour sleep days and multiple syncopal episodes each day due to worsening dysautonomia, but I’m learning to adjust to my new “normal.” We know it will take time, but I can’t say I haven’t been frustrated.

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So I haven’t updated much because there’s really been very little change. I’m still stuck in a hospital room, unable to get the necessary nutrition through tube feeds, bored out of my mind. For the last week or so, I’ve heard that I’ll be going home “tomorrow.” I’m pretty sure that’s medical speak for “never,” but I’m still hopeful. The pancreatitis attack is over and my aspiration pneumonia has cleared. I feel fine and just want to go home. I suppose the positive is that we’re finally getting things in line so when I do go home, I won’t end up back here.

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