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Archive for the ‘mito’ Category

Complicated

Posted in At the Doctor's, Blessings, Boston, Family, Friends, Holidays, Hospital life, mito on 18 December 2010| 2 Comments »

Nothing with me is ever easy.

As you may have heard, yesterday’s surgery to insert a GJ tube was unsuccessful. Apparently, my small intestines had wrapped around my stomach making it difficult to place the tube without damaging the intestines as well.

Unfortunately, because they had already began by pumping air into my stomach and placing markers (tacks) through my stomach, I still woke up in recovery with a significant amount of pain. The nurses and doctors were awesome, however, and let Keith and Stef come see me in recovery almost immediately. I don’t know what I’d do without them by my side throughout this whole ordeal. In fact, I’ve been incredibly blessed to have dozens of friends and family members visiting and/or supporting me. You’ve all made it so much better.

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Lucky

Posted in At the Doctor's, Blessings, Boston, Family, Friends, Hospital life, Kiddos, mito, Stealing words on 15 December 2010| 4 Comments »

The more people I meet the happier I become. From the meanest creature one departs wiser, richer, and more conscious of one’s blessings.
-Samuel Beckett, Waiting for Godot

I guess when it comes down to it, I’m a pretty lucky girl. I’ve been asked on numerous occasions where my outlook comes from. It comes from you, the people who surround me. The people who love me. The people who help me learn from encounters with the “meanest creatures.” The people who remind me each and every day that I am blessed.

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The Mitovian Might

Posted in Blessings, Friends, Hope, Hope Rising, Kiddos, mito, Stealing words, The Future on 9 December 2010| 5 Comments »

Even though mito sucks, I have seen enormous strength in people who refuse to give up, people who follow their dreams despite – even in spite – of mito.

Just over two weeks ago saw the album release of my dear friend Stefani. The culmination of five years of her hard work and four months of my own. It was a huge success. We sold around 100 CDs and raised over $200 for UMDF and IDF through donations alone (she also donates a portion of each CD sold to the aforementioned charitable foundations).

The day after, we heard from a mutual friend. Her 10-year-old daughter Emma also has mito. While listening to the album, Emma found out that Stefani had mito, too. Her response? “Oh wow, now that means that I can follow my dreams too.”

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