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Archive for the ‘Hospital life’ Category

Show some muscle

Posted in At the Doctor's, Boston, Friends, Hope, Hospital life, Keith, mito on 15 September 2010| 2 Comments »

Tomorrow, Keith takes me in to Boston ultra-early for my surgery. My dear friend Stefani will be joining us to provide moral support and advocate for us should something happen. I must emphasize that nothing should happen. This is a routine procedure being performed in one of the world’s best hospitals (MGH). However, they are requiring me to undergo general anesthesia. I don’t always handle general anesthesia well. In fact, I don’t handle general well. The most recent time, for instance, I stopped breathing for a short time following anesthesia. And recovery is long and arduous.

But, apparently, there’s no way around it. We requested numerous times to perform the surgery under local anesthesia, but the surgeon insisted that it had to be done under general. We’re not sure if this is because I’m labeled a “high risk” case and they decided to perform the surgery in the Same-Day Surgery OR rather in the outpatient clinic like it usually is.

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Visiting Friends and a Friendly Visitor

Posted in At the Doctor's, Boston, Friends, Hospital life, Kiddos, Sleep, Tutoring on 9 September 2010| 2 Comments »

First, I apologize for the delay in updates. It’s been a hectic week!

Last Friday, I had a routine neurology appointment at the Brigham. Not too much transpired, but the meeting confirmed that I am in need of a new neurologist. After the appointment, I rewarded myself with a visit to a couple of my friends over at Children’s. We try to visit my good friend Eithene whenever we’re in the area. As I’ve mentioned before, Eithene has been hospitalized most of her four years. While we were at Children’s, we also visited Eithene’s good friend Matthew. Matthew was in for an ileostomy to help with his chronic intestinal pseudo obstruction. We brought them some goodie bags packed with books and zoobles – an interesting toy that I had never heard of before Matthew professed his desire for some. We had a wonderful time visiting with our friends (and, of course, their parents!) before we were off to pick up Keith’s brother from the airport!

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She is “Sasha Fierce”

Posted in Boston, Hospital life, Kiddos, mito on 26 August 2010| 1 Comment »

Today, Keith and I went in to Children’s Hospital Boston to visit some friends. The main purpose of our visit was to watch over Sasha while her parents took her brother to an appointment with the metabolism doctor in another wing of the hospital. As you may or may not recall, I mentioned that Sasha was admitted to CHB on Tuesday. She was having bowel issues as well as some bothersome neurological impairments. The staff in the Emergency Department exhausted their options so she was admitted for some pretty big treatments for such a little girl. Keith went in yesterday night to visit and bring Stefani and Ralph some supplies and came back telling of the little girl who was not the Sasha we know and love. As I wrote in my last post, she is a spirited, joyful, engaging, empowering, strong, and inspiring 5-year-old. I admire her fierceness. Last night, however, she was not fierce; she was resigned.

When Keith and I showed up at 10am, Sasha was still asleep. This is particularly odd for Sasha as she rarely sleeps past 7am. We sneaked in and sat down nearby her bed with True. Pretty soon, the metabolism team came around to check on her so I quietly roused her. When she saw us, she perked up immediately and sat up with a grin. When she saw True, that grin turned into a full-on smile. She giggled as True hopped up onto her bed and gave her kisses. The metabolism team was pleased that she was so responsive as she apparently hadn’t been in the previous days. She was able to hop down and perform the tasks the team asked of her with very little prodding. This pleased the metabolism team further. She showed them some of True’s tricks and said “thank you” as they left.

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