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Archive for the ‘Hope’ Category

The week begins and ends with Hope

Posted in At the Doctor's, Boston, Friends, Hope, Immune Deficiency, Monthly Dose of Hope, Tutoring, umdf on 30 July 2010| 1 Comment »

We’ve had a relatively busy week. We spent the last four days driving into Boston for various reasons. This is not usually the norm. I usually go in about 3 times a week to meet with tutees and go to various medical appointments; Keith goes in to Waltham 2-3 times a week. This week just happened to be “one of those weeks”…

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Opening a Window

Posted in Energy for Life, Hope, mito, True, umdf on 27 July 2010| Leave a Comment »

I was recently told that people were worried about me. After initial confusion – followed by slight flattery – I realized why: I suck at communication. People only hear when things are bad (because Keith calls) and I fail to communicate that – most days – I’m doing just fine. So here we are. Because I’m not likely going to get any better at communicating regularly (just being honest!) and I do really want to keep everyone informed, I started a new blog. I’m hoping that through this page, I can keep you – my family and friends – updated on our life – the good and the bad. I want you all to realize that most of our life is pretty normal; we work, play, and enjoy life. We might, however, do it a little differently. Also, I’m hoping that, through writing, I can bring some awareness to mitochondrial disease and some of the other issues we face. Please feel free to pass on my writings as part of my goal in this blog is to open a window into living life with a mitochondrial disease – and a smile!

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New Beginnings

Posted in Boston, Dogs, Friends, Hope, Tilly, Tutoring, umdf on 25 July 2010| Leave a Comment »

The summer of 2010 will officially be heralded as the Summer of New Beginnings!

Some of the other beginnings’ ends:

  • Keith and I moved from our city apartment overlooking Fenway.  It was incredibly difficult to part with, but we’re on to new adventures.
  • I finished my last term (for now) at Harvard School of Public Health and am officially on leave.  The decision was difficult to make, but – in the end – should be better for my health and emotional well-being.
  • We said farewell to our beloved Tilly.  But I’ll say it again: It’s not really an end; rather, we’ve come full circle.

And the new beginnings:

  • We moved into a nice little place in Chelmsford, MA – just 20 miles north of the city. We’re rather excited as we love our new town and neighbors.  If you want the new address, please e-mail or call!
  • I’ve begun tutoring some amazing children.  Each has different needs and I love being challenged to find the best way to reach them.
  • I’ve taken up my post as treasurer of the New England Chapter of the United Mitochondrial Disease Foundation.  I love it and am incredibly passionate about my job.
  • A new blog!  The hope is to keep it somewhat updated so my friends and family can hear directly from me how we’re doing so no one has to worry.  I hope that – through reading this – you can better understand what we deal with and how we deal with it on a daily basis – with perseverance, laughter, and hope.

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