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Archive for the ‘Home sweet home’ Category

I’m home and adjusting. After two hospital stays adding up to 40 days out of the last 46, I’m experiencing some major culture shock. It’s weird being able to do what I want when I want. And ironically, I’m even struggling to adjust to sleeping through the night without a vitals check every 2 hours. Nevertheless, I’m happy to be home.

It hasn’t been easy between 16-20 hour sleep days and multiple syncopal episodes each day due to worsening dysautonomia, but I’m learning to adjust to my new “normal.” We know it will take time, but I can’t say I haven’t been frustrated.

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