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Archive for the ‘Family’ Category

Lucky

Posted in At the Doctor's, Blessings, Boston, Family, Friends, Hospital life, Kiddos, mito, Stealing words on 15 December 2010| 4 Comments »

The more people I meet the happier I become. From the meanest creature one departs wiser, richer, and more conscious of one’s blessings.
-Samuel Beckett, Waiting for Godot

I guess when it comes down to it, I’m a pretty lucky girl. I’ve been asked on numerous occasions where my outlook comes from. It comes from you, the people who surround me. The people who love me. The people who help me learn from encounters with the “meanest creatures.” The people who remind me each and every day that I am blessed.

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A Different Kind of Holiday Spirit

Posted in Family, Friends, Holidays, Keith, umdf on 11 December 2010| 1 Comment »

As I sit in my room at MGH for the 7th day now – with no end in sight – I had begun to forget that Christmas was just around the corner. I got about halfway through decorating our tree before I went inpatient and I’m not sure if I’ll even get the chance to finish before the holiday is upon us.

Luckily, Keith and I have decided to continue with our trend in recent years and scale the holidays back this year. We’re certainly not scaling back the holiday cheer – oh, no! But we try to walk a different path when it comes to the consumer aspects.

Each year, we hem and haw, stress and spend. And what’s the result? We give our loved ones things. Gift cards that get lost. Trinkets that gather dust. Games that are played for a few months, then forgotten.

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A Journey with Hope

Posted in Family, Hope Rising, Life, Raising Awareness, Sharing is caring on 17 November 2010| 1 Comment »

The last 3 months I’ve been busy. Really busy. I’ve logged over 200 hours expanding my knowledge of Photoshop (something with which I had virtually no experience prior to last May), relearning html/css/java, and taking in whatever I could about music and distribution to help my dear friend Stefani get her message heard. Because she’s amazing. Her music is inspiring. And I think everyone else should be given the chance to connect with her music as I have.

It may not be your “cup of tea,” so to speak, but you can’t deny what an amazing journey she’s led. Like me, she has mitochondrial disease. She not only deals with her own disease with dignity, but she also cares for her two young children who have their fair share of medical difficulties. And yet despite this, she reaches out to others in need, whether through her positions with IDF and UMDF or by sharing her lunch to the homeless man on the pike off-ramp. Now, she’s sharing her hope through this CD which speaks of her 5-year journey. I feel honored to call her “family.”

Her debut CD, Hope Rising: The Journey, is now available for pre-order through her website and will be delivered sometime after her release date of November 19th. While you’re there, you can take a gander at some of the help I’ve been lucky to share (the CD cover and insert, her Release Party announcement, and the website itself). And if you encounter any issues with the site, please let me know. It’s still a learning experience and I love getting feedback!

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