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Archive for the ‘Boston’ Category

Another step

Posted in At the Doctor's, Boston, Friends, Hospital life, Keith, mito, Sleep on 19 September 2010| Leave a Comment »

On Thursday, I was able to take one more step on this crazy mito journey: I finally got my muscle biopsy. We are so grateful that we have this out of the way now (since it’s one of the more invasive steps), but we will, unfortunately, be playing the waiting game now as the results frequently take months to come back.

Keith and I woke up at 5am on Thursday and picked up my dear friend, Stefani, to head in to Boston. I was so grateful that Stef said that she wanted to come for moral support. She and her husband, Ralph – and her parents! – are there for us every step of the way even though Stef and her two kids have mito as well. We left her home around 5:45 and were off! Even though we got there early, we barely had to wait before they took the three of us in for pre-op. I was happy that there were people there to entertain me as pre-op was a long and boring process.

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Show some muscle

Posted in At the Doctor's, Boston, Friends, Hope, Hospital life, Keith, mito on 15 September 2010| 2 Comments »

Tomorrow, Keith takes me in to Boston ultra-early for my surgery. My dear friend Stefani will be joining us to provide moral support and advocate for us should something happen. I must emphasize that nothing should happen. This is a routine procedure being performed in one of the world’s best hospitals (MGH). However, they are requiring me to undergo general anesthesia. I don’t always handle general anesthesia well. In fact, I don’t handle general well. The most recent time, for instance, I stopped breathing for a short time following anesthesia. And recovery is long and arduous.

But, apparently, there’s no way around it. We requested numerous times to perform the surgery under local anesthesia, but the surgeon insisted that it had to be done under general. We’re not sure if this is because I’m labeled a “high risk” case and they decided to perform the surgery in the Same-Day Surgery OR rather in the outpatient clinic like it usually is.

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Visiting Friends and a Friendly Visitor

Posted in At the Doctor's, Boston, Friends, Hospital life, Kiddos, Sleep, Tutoring on 9 September 2010| 2 Comments »

First, I apologize for the delay in updates. It’s been a hectic week!

Last Friday, I had a routine neurology appointment at the Brigham. Not too much transpired, but the meeting confirmed that I am in need of a new neurologist. After the appointment, I rewarded myself with a visit to a couple of my friends over at Children’s. We try to visit my good friend Eithene whenever we’re in the area. As I’ve mentioned before, Eithene has been hospitalized most of her four years. While we were at Children’s, we also visited Eithene’s good friend Matthew. Matthew was in for an ileostomy to help with his chronic intestinal pseudo obstruction. We brought them some goodie bags packed with books and zoobles – an interesting toy that I had never heard of before Matthew professed his desire for some. We had a wonderful time visiting with our friends (and, of course, their parents!) before we were off to pick up Keith’s brother from the airport!

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