Posted in At the Doctor's, Blessings, Boston, Family, Friends, Holidays, Hospital life, Keith, Kiddos, mito, Tummy troubles on 26 December 2010| Leave a Comment »
Today marks Day #21 in patient at MGH. It also marks our first real blizzard since moving to New England.
I apologize for the delay in posts. The second go at the GJ procedure was a success, but I’ve been in a significant amount of pain and discomfort since then. And not too much has changed – despite yet another tube running into my body. Nonetheless, this will likely be a long post to get everyone updated on the latest news.
Posted in At the Doctor's, Blessings, Coming together, Family, Friends, Holidays, Hospital life, Immune Deficiency, Kiddos, mito, Tummy troubles, Tutoring on 20 December 2010| 1 Comment »
It looks like Christmas came to my room and spewed red and green vomit everywhere. And I love it!
I’ll admit it: I was starting to lose my spirit a little after I’d been in two weeks, without an end in sight, and the projection of spending Christmas at MGH. I’d been poked and prodded every which way. Despite what my medical team was doing, my blood work was abnormal. And my first glimpse at freedom (the first attempt at the GJ tube procedure) failed. Fortunately, I’ve surrounded myself with people who make it nearly impossible to lose one’s spirit!
Posted in At the Doctor's, Blessings, Boston, Family, Friends, Holidays, Hospital life, mito on 18 December 2010| 2 Comments »
Nothing with me is ever easy.
As you may have heard, yesterday’s surgery to insert a GJ tube was unsuccessful. Apparently, my small intestines had wrapped around my stomach making it difficult to place the tube without damaging the intestines as well.
Unfortunately, because they had already began by pumping air into my stomach and placing markers (tacks) through my stomach, I still woke up in recovery with a significant amount of pain. The nurses and doctors were awesome, however, and let Keith and Stef come see me in recovery almost immediately. I don’t know what I’d do without them by my side throughout this whole ordeal. In fact, I’ve been incredibly blessed to have dozens of friends and family members visiting and/or supporting me. You’ve all made it so much better.
The woods are lovely, dark, and deep,
But I have promises to keep,
And miles to go before I sleep,
And miles to go before I sleep.
-Robert Frost
Still Miles to Go 