Posted in At the Doctor's, Boston, Hospital life, mito, Raising Awareness, The Future on 3 November 2010| 1 Comment »
Goodness! I seem to have neglected to update recently. My apologies for the delays. I’ve got some great Autumn goodies to share but I want to get the “ugly” stuff out of the way first. So stay tuned for the fun stuff.
On the 29th, I went in for my Antro-duodenal Motility Study. That’s the ugly and technical words for “test to see how well the muscles in my stomach and the entry to my small intestine work.”
Posted in At the Doctor's, Boston, Friends, Hospital life, Keith, mito, Sleep on 19 September 2010| Leave a Comment »
On Thursday, I was able to take one more step on this crazy mito journey: I finally got my muscle biopsy. We are so grateful that we have this out of the way now (since it’s one of the more invasive steps), but we will, unfortunately, be playing the waiting game now as the results frequently take months to come back.
Keith and I woke up at 5am on Thursday and picked up my dear friend, Stefani, to head in to Boston. I was so grateful that Stef said that she wanted to come for moral support. She and her husband, Ralph – and her parents! – are there for us every step of the way even though Stef and her two kids have mito as well. We left her home around 5:45 and were off! Even though we got there early, we barely had to wait before they took the three of us in for pre-op. I was happy that there were people there to entertain me as pre-op was a long and boring process.
Posted in At the Doctor's, Boston, Friends, Hope, Hospital life, Keith, mito on 15 September 2010| 2 Comments »
Tomorrow, Keith takes me in to Boston ultra-early for my surgery. My dear friend Stefani will be joining us to provide moral support and advocate for us should something happen. I must emphasize that nothing should happen. This is a routine procedure being performed in one of the world’s best hospitals (MGH). However, they are requiring me to undergo general anesthesia. I don’t always handle general anesthesia well. In fact, I don’t handle general well. The most recent time, for instance, I stopped breathing for a short time following anesthesia. And recovery is long and arduous.
But, apparently, there’s no way around it. We requested numerous times to perform the surgery under local anesthesia, but the surgeon insisted that it had to be done under general. We’re not sure if this is because I’m labeled a “high risk” case and they decided to perform the surgery in the Same-Day Surgery OR rather in the outpatient clinic like it usually is.
The woods are lovely, dark, and deep,
But I have promises to keep,
And miles to go before I sleep,
And miles to go before I sleep.
-Robert Frost
Still Miles to Go 